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Inappropriate Use of Surveys: Ethics and Accountability

The Cambridge Analytica Scandal

In 2014, psychologist Aleksandr Kogan at Cambridge University recruited people to complete surveys through a Facebook app called "This Is Your Digital Life." The app harvested data from approximately 87 million users and their friends without proper consent (Confessore, 2018). Kogan passed this data to SCL, which later founded Cambridge Analytica, a political consulting firm. The data were used to build psychological profiles for targeted political advertising during the 2016 US presidential campaign.

Cambridge University's own psychology research ethics panel rejected Kogan's 2015 proposal for further academic research using this data, finding Facebook's consent approach "falls far below the ethical expectations of the university" and calling it "deceptive" (Guardian, 2018). The scandal went public in March 2018 when former employee Christopher Wylie whistleblew to major newspapers, exposing how innocuous survey data points were "bundled together and trawled by algorithms" to reveal sensitive information users never expected to be disclosed (Nature, 2018).

Additional Examples of Survey Misuse

Case 1: Fabricated Survey Data in Academic Research

A high profile study published in Science examining whether gay canvassers could convince people to support same sex marriage was retracted after evidence of fraud emerged (Reuters, 2015). Graduate student Michael LaCour fabricated survey data, lied about funding sources including false claims of Ford Foundation support, and could not produce original data when challenged. When researchers attempted replication, the polling company Qualtrics denied involvement in the survey. This case demonstrates how survey fabrication can corrupt scientific literature and waste research resources.

Case 2: Unauthorized Data Scraping from Health Communities

Multiple cases of researchers scraping data from PatientsLikeMe, an online health community, illustrate systematic ethics violations (Chiauzzi and Wicks, 2019). In one incident, commercial market researchers from Nielsen Media created unauthorized accounts and used automated scraper software to harvest mental health discussion data for an undisclosed client. In another case, computer science researchers created over 50 bot accounts to scrape patient treatment data, building neural networks to analyze side effects without any ethical approval or informed consent. These violations included unauthorized access, misrepresentation of researcher identities, lack of informed consent, and use of sensitive patient data without permission.

Ethical, Social, Legal, and Professional Impacts

Ethical Implications: These cases violate fundamental research ethics principles including informed consent, privacy protection, and minimization of harm (Chiauzzi and Wicks, 2019). The Cambridge Analytica scandal exposed critical gaps in research ethics frameworks, as current regulations often exclude internet research from strict oversight unless data are both private and identifiable (Nature, 2018). Participants had no meaningful choice about data use, and sensitive information about political views, psychological traits, and health conditions was exploited without knowledge or consent.

Social Impact: Survey misuse erodes public trust in research institutions and technology platforms. After the Cambridge Analytica revelations, Facebook faced massive user backlash and regulatory scrutiny worldwide. Similarly, when PatientsLikeMe notified members about the Nielsen Media scraping incident, approximately 200 members closed their accounts (Chiauzzi and Wicks, 2019). This demonstrates how ethics violations damage the social license researchers need to conduct valuable public health and social science studies. Vulnerable populations, including those with mental health conditions or stigmatized diseases, face particular harm when their data are misused.

Legal Consequences: The Cambridge Analytica scandal prompted global regulatory action. Facebook faced a $5 billion fine from the US Federal Trade Commission and was investigated by multiple international regulators. The incident accelerated implementation of data protection regulations like the European Union's General Data Protection Regulation (GDPR), which imposes strict requirements on data collection, processing, and consent. The scandal also sparked ongoing discussions about potential regulations for Big Tech companies to protect consumers from weaponization of private data (Nature, 2018).

Professional Implications: Survey misuse raises questions about disciplinary standards and oversight. Computer science researchers increasingly access health data but may lack training in research ethics that medical and social science professionals receive (Chiauzzi and Wicks, 2019). The LaCour fabrication damaged reputations across multiple institutions and highlighted gaps in peer review processes. For practitioners, these cases demonstrate that technical capability does not excuse ethical responsibility. Professional bodies now face pressure to develop clearer standards for social media research, with institutional review boards requiring expertise in online research methodologies to properly evaluate ethical applications.

References

  • Chiauzzi, E. and Wicks, P. (2019) 'Digital trespass: ethical and terms of use violations by researchers accessing data from an online patient community', Journal of Medical Internet Research, 21(2), e11985. Available at: https://doi.org/10.2196/11985
  • Confessore, N. (2018) 'Cambridge Analytica and Facebook: the scandal and the fallout so far', The New York Times, 4 April. Available at: https://www.nytimes.com/2018/04/04/us/politics/cambridge-analytica-scandal-fallout.html (Accessed: 25 January 2026).
  • Guardian. (2018) 'Cambridge University rejected Facebook study over "deceptive" privacy standards', The Guardian, 24 April. Available at: https://www.theguardian.com/technology/2018/apr/24/cambridge-university-rejected-facebook-study-over-deceptive-privacy-standards (Accessed: 25 January 2026).
  • Nature. (2018) 'Cambridge Analytica controversy must spur researchers to update data ethics', Nature, 556(7699), p. 7. Available at: https://doi.org/10.1038/d41586-018-03856-4
  • Reuters. (2015) 'Science journal retracts gay marriage study after evidence of fraud', Reuters, 28 May. Available at: https://www.reuters.com/article/world/us/science-journal-retracts-gay-marriage-study-after-evidence-of-fraud-idUSL1N0YJ246/ (Accessed: 25 January 2026).
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